Crowley, Lance To Chair Congressional Rare Disease Caucus

Dec 11, 2014 Issues: Health Care

Caucus has served as platform for countless advocates, clearinghouse for ideas and solutions

WASHINGTON, D.C. --- U.S. Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY) today announced they will continue to serve as the bipartisan Co-Chairs of the Congressional Rare Disease Caucus in the 114th Congress that will begin in January.  The duo has chaired the caucus for four years.  The Congressional Rare Disease Caucus is a forum for Members of Congress to voice constituent concerns, collaborate on ideas, facilitate conversations between the medical and patient community and build support for legislation that will improve the lives of people with rare diseases.

I have a great interest in the work of the Rare Disease Caucus.  I am impressed and humbled continually by the tireless advocates and their commitment to those suffering from challenging diseases – many without any treatments or cures.  Our job in the Rare Disease Caucus is to help them meet with our Nation’s leaders, question the decision makers in both the public and private sector and connect with the best minds in innovation.  I look forward to building on our success in the new Congress,” said Rep. Lance.  “Congressman Crowley has been a great partner and together we will continue to work toward results that make a positive difference in the lives of many.” 

“Patients and families affected by a rare disease have been without a light at the end of the tunnel for far too long,” said Rep. Crowley. “With one out of every 10 Americans suffering from a rare disease, it is absolutely critical that we do all we can to identify research opportunities, therapy options, and treatment. I look forward to partnering with Congressman Lance once again in leading the Rare Disease Caucus and continuing our efforts to build awareness of rare diseases and identify solutions to help the many Americans who are suffering.”

The Rare Disease Caucus seeks ideas from those in the public and private sector to build bipartisan, realistic and effective solutions that might yield better treatments, safer therapies and - for some - even cures.  The Caucus held nearly a dozen forums in the past year focusing on the cycle of disease, building a support network, innovative medical research and biomedical improvements and how the discovery and development of new treatments for chronic and rare diseases is changing lives every day.  The bipartisan caucus has over 80 members.